Late Dumping Syndrome

Back in March, I wrote a post about Dumping Syndrome

Signs and symptoms of dumping syndrome generally occur right after eating, especially after a meal rich in table sugar (sucrose) or fruit sugar (fructose). Signs and symptoms might include:

Nausea, Vomiting, Abdominal cramps, Diarrhoea, Flushing, Dizziness, lightheadedness, Rapid heart rate

If that wasn’t bad enough, there’s also Late Dumping Syndrome!

Late dumping syndrome starts one to three hours after you eat a high-sugar meal. The signs and symptoms develop that long after you eat because your body releases large amounts of insulin to absorb the sugars entering your small intestine. The result is low blood sugar. Signs and symptoms of late dumping syndrome can include:

Sweating, Flushing, Dizziness, lightheadedness, Weakness, Rapid heart rate

(https://www.mayoclinic.org/diseases-conditions/dumping-syndrome/symptoms-causes/syc-20371915)

About last night…

After putting up the Christmas tree and beginning to get into the festive spirit, I decided to make B and I some “gløgg”. I had bought the bottle from IKEA the previous week and was already a little weary of the high sugar content after analysing the label, but figured I would be okay if I had a small cup and drank it very slowly. Oh, how I was wrong…

glogg
The Culprit – 100ml: 79kcal and 19g of sugar

Over an hour later, as I was getting into bed, I started to feel clammy and warm. Next, came the dizziness, confusion, shakiness and heart palpitations. I immediately grabbed the squeezable honey; my “go to” item, to help raise my blood sugar as quickly as possible. For the next 30 minutes or so, I squeezed small amounts into my mouth and waited for the symptoms to fade away.

🍯🍯🍯

My first episode, around a year ago was frightening. I’d never experienced anything like it before and wasn’t even sure what was going on! I cried, and to this day I can’t explain why. I wasn’t sad, my head just felt completely jumbled up. It was a bizarre experience and I couldn’t really speak or do anything. Luckily, we figured that it was a drop in blood sugar and squeezable honey came to the rescue.

I have to be careful not to overdo it with the honey though, because on one occasion, I accidentally gave myself (early) Dumping Syndrome (after a Late Dumping episode) from consuming far too much! 🙈 Sometimes, you just can’t win!

10 Month Update…

On Thursday 26th July, 3 days into my vacation on Fjørtoft and exactly 10 months since my TG, I was admitted to Ålesund Sjukehus, after going to the Emergency Room.

I was only one day into my vacation when I woke up with swollen tonsils and had difficulty swallowing. This got progressively worse over the next two days, making it difficult to both eat and drink, and to even swallow my own saliva. It’s been 10 months since my surgery and I am STILL losing a lot of weight (25kg lost), so being unable to eat or drink properly is a huge problem for me. I held out as long as I could, taking ibuprofen in hope that it would help reduce the swelling, but nothing helped.

We called the emergency room, explained the situation to them and was told to come in.

 

(First, we had to take the ferry to Brattvåg and drive from there)

The Legevakt was much smaller than the one in Bergen, and there was only a couple of people waiting to be seen, so I was seen by a Doctor very quickly. He checked me over and explained that my tonsils weren’t big enough to be causing an obstruction, and referred me to the hospital as the symptoms I was describing were similar to that of a stricture.

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Upon arrival, I had a blood test that revealed elevated leukocytes and CRP levels – indicating a sign of infection. After a long wait in the triage area, a Doctor came to see me and explained that since I didn’t have a fever, but had swollen tonsils and had had a cough and cold for a couple of weeks, that it was most likely a viral infection in my throat that had spread down into my oesophagus.

Around midnight, I was taken for a chest x-ray, and then taken to the ward to get some sleep.

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View from the Hospital

The following morning, I met with a surgeon that performed an upper endoscopy. There were no signs of a stricture, but my oesophagus was covered in white spots. They took a few biopsies and explained to me that it was likely a viral infection that had spread from my throat. They also told me that they would write to my GP in Bergen to be referred for a CT scan since I was still losing a lot of weight.

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Bjørnar reading my last rites 😀

After waiting an hour for the local anaesthesia to wear off in the back of my throat, I was allowed to try and eat something. I started off with tomato soup, then a banana. Both went down fine with little pain. After eating lunch, I was discharged and could return back to Fjørtoft to enjoy the rest of the sunshine.

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The closest I can get to horse without having an allergic reaction!

After a lot of rest, fluids and paracetamol, my throat is feeling much better and I can eat “normally” once again. However, in the past two weeks I have lost 2kg, and have had two episodes of hypoglycaemia – caused by late dumping syndrome. I’m less than 2kg away from being classed as underweight, and have been referred for emergency help at the hospital regarding my weight loss and diet.

So despite me looking well on the outside and being told by others that I look well, inside is a struggle. I feel physically drained very often, I get nauseous and uncomfortably full very easily, and feel that I look too skinny and bony.

Hopefully, I can enjoy the rest of my time here on Fjørtoft and gain back some of the weight that I have lost… 🤞

 

Dumping Syndrome

Most mornings, I start my day with a coffee followed by a smoothie. My usual favourite consists of 1 banana, a handful of strawberries, almond milk and a few generous dollops of coconut milk (the thick stuff from a can).

It’s my favourite because not only does it taste delicious, it is also lactose free (that’s a whole new issue altogether now), contains a decent amount of calories and goes down a treat!

However, I’ve recently started to feel a bit funny after drinking my smoothie. Breakfast has been followed with a side order of heart palpitations and dizziness.

It would pass after a short while, so I persevered. After all, I don’t have many breakfast options these days and smoothies are my “go to”.

But today was a different story altogether. Shortly after the palpitations, came the most painful cramping sensations (think menstrual cramps but in your intestines). It felt like my innards were on fire whilst being repeatedly squeezed. The pain not subsiding, I crushed up half a morphine tablet in my mouth, washed it down with some juice, curled up in a ball and waited for the pain to drift away.

The joys of dumping syndrome…

Signs and symptoms of dumping syndrome generally occur right after eating, especially after a meal rich in table sugar (sucrose) or fruit sugar (fructose). Signs and symptoms might include:

Nausea, Vomiting, Abdominal cramps, Diarrhea, Flushing, Dizziness, lightheadedness, Rapid heart rate

https://www.mayoclinic.org/diseases-conditions/dumping-syndrome/symptoms-causes/syc-20371915

It’s certainly not the first time I’ve experienced dumping. A few times I’ve overdone it with the cookies or a dessert (although it doesn’t take much to overdo it) 🙈 but the frustrating thing with this episode is that I’ve been drinking the same smoothie for a while now with no problems, up until this past week.

Days like today remind me that my body is unpredictable…

So I guess it’s back to the drawing board for breakfast ideas!